I dont like people to tell me what to do,when they are actually younger than me.
Too bad,you are in the same cca as me,and you somehow annoyed me.
Yes,life's too bad for you.
Cos you are borned in the year,1995 and not 1991-1994.
You have never worn the Northland's grey skirt before,or wear that translucent blouse.
You have never worn the grey tie too. ):
I now owe the teachers a lot of homeworks,files and all.
History test tomorrow,Geog test today was pretty easy.
If I fail I go rock chair alr.
Anyway,yesterday was chinese test.
And escaped from it,with valid reason duh.
Heng siol,compo leh.
-Wipes away sweat and floods River of nile.
Lucy Betts, at eighteen years old, is the oldest surviving harlequin ichthyosis sufferer in Britain. Her survival is down to a life-saving ritual of scrubbing, bathing and creaming to keep the skin growth under control.
Harlequin ichthyosis only occurs when both parents carry the same defective gene, the chances of this are one in a million. However, the chance of these parents producing a harlequin child are 1 in 4. Despite these odds, the Betts chose to have a second child. Sadly they could not defy the odds and Hannah was born, also with harlequin ichthyosis but with the added complication that she also has cerebral palsy.
Overnight, Lucy and Hannah's bodies grow as much skin as a normal body would grow in 14 days. Every morning and every night they have to bathe for up to 2 hours. The top layers of excess skin have to be rubbed off and softened with skin cream to prevent it cracking and causing infection. This can be a very painful process which the girls have undergone since birth. Between them, Hannah and Lucy use one 12kg tub of skin cream every 5 days.
The condition has affected Lucy's sight leaving her blind in one eye with only 10% vision in the other. This has been caused by the flaking skin behind the eyelid which scratches the cornea.
For years, the Betts believed they were the only harlequin family in Britain, but when Lucy was ten, they found out to the contrary.
The Bowen family gave birth to Dana who has the harlequin skin condition, they too chose to ignore the odds and have a second child. Lara was born with the same dreadful skin condition.
Dr David Atherton a consultant paediatric dermatologist says: "Most children with harlequin ichthyosis die within a few days of birth. The first big problem they have is massive fluid loss. The main purpose of skin is to keep liquid in th body so many, in the past, died of renal failure in infancy."
Dana Bowen was unfortunate, the skin on her fingers and toes was extremely tight, early on, and interfered with the blood flow so she has lost the tips of several of her fingers.
Eight years after their first meeting, the harlequin families come together again. There has been a medical breakthrough and for the first time the families have been given hope of a possible
Credits to http://www.mymultiplesclerosis.co.uk/misc/harlequin.html
Sad die please.